The PDBN site is a catalog of blogs from people dealing with Parkinson’s
Disease. Each entry has the blog name/link and a descriptive or
excerpted sentence or two, with space for reader comments, and a five
point rating scale. You can transfer to the full blog, and post directly with
the author as usual. You can also return to the PDBN and post comments
on the network page, or continue to other pages. Note that your network
posts do NOT automatically flow back to the original blog author; while
the PDBN tries to contact them, they might be unaware of reader
comments about their blog on the blog network.
Each blog on the PDBN is assigned to one of three categories, identified
by an icon. The list of blogs is sortable using the drop-down menu in
the header bar of the blog section.
The Advisory Board does not administer the Network; like you, we try
to provide and check helpful information and links to our community.
The Internet is diffuse by design, and having Parkinson’s is an
isolating, individualized experience. There’s a lot of helpful
information on the Web; the problem is finding what you want to know
before you know what to ask! The PDBN should be a switchboard, helping
people to connect. Your comments on how to improve this process are
always welcome.
4 comments:
boy i am now confused i join pd and end up with google acct. and pd. account i just wrote my heart out and so tired end of day soon.
Trying to find out how other blogger caregivers manage hallucinations, and all of the side effects of meds.
my husband will be 84 and i 82 and pretty healthy trying to keep him out nursing home per se by 4 kids help, as mind a 1 and ok on memory and pottie just in 2006 went blind and worse on me to do all things now.
I get down in dumps and talk to God all day and we keep joke and emails from Ireland where he was born and I read them to him
His mind still A! and can't afford a nursing home so all agreed keep him at home as we hate n.h. as 2 sisses and 1 bro in them and stink literally.
well that is my question, how do you caregivers cope???????
seniors got us a nice volunteer 4 hrs. two times a week so i can go out and shop and with girls lunch to keep me normal???????
would love to her your comments.
God all day helps
I TRIED LEAVING A COMMENT ON MICHELLE AND DIDN'T WORK????????
SO NEW AT THIS READY TO HANG IT UP NOT EASY
We were caregivers for two Alzheimer's parents, and we kept them at home, too. I know it's not the same as PD, since the mind goes with Alzheimer's while the body is OK until near the end, but the stresses are similar, I would imagine. Prayer is certainly going to be helpful, but having the support of people who will give you time to be away from the care giving, even for a few hours, is essential. If you don't take care of yourself, you can't take care of your loved one.
It sounds like you need to ask for more help from your children. They may not realize just how much you're having to do, or maybe they just need to be told straight out what they need to be doing to help you out. Have you tried a family meeting?
I'll keep you in my prayers, Virginia.
I've written a new post on my blog about what my undiagnosed early symptoms might have been, at the request of one of my readers who thinks he may have PD. I'd appreciate it if others with PD would join in with their own comments.
Earliest UNDIAGNOSED Symptoms of Parkinson's Disease???
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